Support for Rural Families of Hospitalized Infants: The Parents' Perspective
作者:
FlynnLinda L.,
McCollumJeanette,
期刊:
Children's Health Care
(Taylor Available online 1993)
卷期:
Volume 22,
issue 1
页码: 19-37
ISSN:0273-9615
年代: 1993
DOI:10.1207/s15326888chc2201_3
出版商: Lawrence Erlbaum Associates, Inc.
数据来源: Taylor
摘要:
The provision of family-centered care in the hospital arena has become a national commitment. Recognizing and supporting the family's role means evaluating whether attitudes, policies, and practices address the immediate and the long-term needs of the total family rather than just the current needs of the child. Results of a study to determine parents' perceptions of supportive services available in the hospital immediately following the birth of their child with special health care needs are reported. In-depth interviews with mothers living in rural areas were conducted. Mothers emphasized the importance of access to their child; the need for timely, honest, straightforward information about their child's condition and progress; the intense emotional reaction to the intensive care environment; and the importance of an early link to community-based early intervention services. Overall, parents conveyed the importance of recognizing the family as an integral part of the child. Implications and recommendations for family-centered services are discussed.
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