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The primary caregiver's perception of the dying trajectory An exploratory study

 

作者: Emily Holing,  

 

期刊: Cancer Nursing  (OVID Available online 1986)
卷期: Volume 9, issue 1  

页码: 29-37

 

ISSN:0162-220X

 

年代: 1986

 

出版商: OVID

 

数据来源: OVID

 

摘要:

The purpose of this exploratory descriptive study was to describe dimensions of the dying trajectory as perceived by the primary caregiver of an adult who died of cancer. Fourteen individuals who were the primary caregiver of a terminally ill person in the home were interviewed within 12 months of the patient's death. Data were analyzed using descriptive statistics and content analysis. Findings show that for the majority of caregivers, their expected duration of the dying trajectory approached the actual duration. The trajectory was generally perceived as passing more slowly for the patient than for the caregiver. Subjects identified critical events or concerns for them during the course of the trajectory. These were categorized into two major categories (stressful and joyful) and 17 subcategories. The content areas in which the largest percent of subjects named at least one event were physical difficulty in providing care, difficulty in watching the patient's physical symptoms, closeness between caregiver and patient, and family coming together to visit or offer support. The physical and emotional intensity of each reported critical event was measured using a six-point scale. The findings suggest that the dying trajectory is more emotionally intense than physically intense for both caregiver and patient.

 

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