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The Development of a Teaching Model for Patients with Hemophilia and their Families

 

作者: ClementsMaribel J.,   BlumensteinbutlerRegina,   MeredithKaren,  

 

期刊: Issues in Comprehensive Pediatric Nursing  (Taylor Available online 1984)
卷期: Volume 7, issue 4-5  

页码: 217-231

 

ISSN:0146-0862

 

年代: 1984

 

DOI:10.3109/01460868409006344

 

出版商: Taylor&Francis

 

数据来源: Taylor

 

摘要:

Patient education is an essential part of comprehensive health care. However, there are very few standardized teaching guides or materials for nurses to use for developing educational programs and individual teaching plans. As a result, patient education programs vary considerably and few programs have clear goals with measurable outcomes and a systematic method of evaluation.Hemophilia is a lifelong bleeding disorder. Thorough patient and family education is necessary if the patient is to receive optimal care and learn to function independently. A survey of the hemophilia treatment centers in the United States confirmed that the type and amount of patient and family education provided by hemophilia nurse coordinators varied greatly from center to center and that there was a need for a systematic teaching guide as well as specific teaching materials.This article describes the process used by the National Hemophilia Foundation Nursing Committee to develop theHemophilia Patient/Family Educational Model, a systematic teaching guide for hemophilia care providers. The same process could be used to develop educational models for other chronic diseases.

 

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