Genetic Support Groups:
作者:
WeissJoanO.,
期刊:
Women&Health
(Taylor Available online 1989)
卷期:
Volume 15,
issue 3
页码: 37-53
ISSN:0363-0242
年代: 1989
DOI:10.1300/J013v15n03_04
出版商: Taylor&Francis Group
数据来源: Taylor
摘要:
Genetic counseling for parents of children with a genetic disorder is only the beginning of needed support services. One important member of the health team is the genetic support group. Within a genetic support organization, individuals and families discover that they are not alone and that they can be helped by others affected by similar genetic diagnoses. Ideally, a strong partnership between the support group members and interested health professionals will enable the organization to meet its goals. Networks, such as the Alliance of Genetic Support Groups, can help member organizations become a unified force without taking away their individual agendas.
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