摘要:

&NA;This column is a place to meet caregivers and share their stories in order to enrich our understanding. If you know of a story that needs to be shared, please contact the editor at 571 Faulkenham Road, Kings County, RR#3 Springfield, Nova Scotia, Canada BOR 1H0; email:c.sifton@ns.sympatico.ca.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;This column explores an applied description from the field of a program or design that has been very successful. If you know of someone whose expertise and experience should be shared, please contact the editor at 571 Faulkenham Road, Kings County, RR#3 Springfield, Nova Scotia, Canada BOR 1H0; email:c.sifton@ns.sympatico.ca.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;With advances in earlier diagnosis and a deepening commitment to understanding the subjective experience of Alzheimer's, a growing body of literature is giving voice to the direct feelings and experiences of persons with the disease. Dialogue in individual and group sessions, video recordings, and personal narratives written by diagnosed individuals reveal common themes. They include: receiving and disclosing the diagnosis; anticipating the future; experiencing symptoms; changes in self concept; family and social relationships; meaningful activity; and the value of humor and hope. These themes provide avenues for exploring enhanced communication between persons with Alzheimer's and those entrusted to their care.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;This article provides a description of the essential features of altruistic love in the context of care for the person with Alzheimer's disease and then proposes an ethics of love in its affective aspects. This universal ethics of love is contrasted with “hypercognitive” exclusionary notions of “who counts” morally, and especially with narrow “personhood” theories of moral status. The article concludes with attention to the spiritual aspects of love that provide deeper support for the other‐regarding phenomena of care, compassion, and forgiveness. Quality of life is described as essentially a creation of love.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;Persons with dementia have spiritual needs that can be fulfilled by well‐trained, sensitive family and professional caregivers. This article defines spirituality and differentiates that term from religion. Ways to meet the spiritual needs of persons with dementia are described, with the authors arguing that the cognitive losses of individuals with Alzheimer's disease and related disorders actually make spiritual needs more apparent. The authors argue that nurturing the spirit of the person with dementia is essential to quality of care and quality of life and that it also enhances the spiritual well‐being of caregivers and staff.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;This article argues that people with Alzheimer's disease or another dementia in the advanced stage (AAD) need consoling care. Living with AAD means suffering, the core of which is not feeling at home. In addition to suffering as a consequence of the disease, people with AAD may also experience care that is degrading. People with AAD need consolation, the center of which is communion, that is, sharing with others. People with AAD can be offered bodily, psychological, and spiritual consolation.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;Older Americans who live alone are an often‐forgotten group, although their numbers are increasing, and they are particularly vulnerable when faced with a chronic illness such as Alzheimer's disease (AD). An estimated one‐fifth of individuals with some form of dementia live alone; the challenge facing most communities is how to first identify, and then respond to, this population in a way that preserves their independence and dignity and at the same time helps keep their environment safe. A review of one community's attempt to respond to this challenge is described. Realizing that addressing the needs of live alones transcended the scope of any single agency, the Alzheimer's Association, Big Sioux Chapter mobilized a diverse group of service providers and other community stakeholders to develop a proactive plan to identify and assist local live alones.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;Delivering health care when a husband and wife both have dementia, while safeguarding the personhood of each, is challenging. Caregiving includes defining resident rights vs. “couple rights,” the appropriateness of sharing a room, and the overall goals for daily living as individuals and as a couple. A Couples' Admission Form, Couples' Care Plan, and a Couples' Bill of Rights are key elements for supporting the holistic wellness of the couple and as unique individuals. Insight and helpful information, gained from family focus groups, is included. An ethics procedure and staff training game enables staff to incorporate sensitivity within decision making. Hopefully, a balance between the “I” and the “we” can be found that upholds both of the residents' well‐being with honor and respect.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;The intent of this column is to offer an annotated commentary and suggestions for clinical application on a variety of resources: books, videos, teaching materials, equipment, and products. Readers are invited to contact Kathy Laurenhue at Mather Institute on Aging, 1603 Orrington Avenue, Suite 1800, Evanston, IL 60201; e‐mail:Klaurenhue@matherlifeways.comto share information about resources they have found helpful, as well as their experiences and opinions.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID

摘要:

&NA;BUILDING IDEASis dedicated to exploring the various ways the environment influences and affects individuals with dementia and the settings they inhabit and experience. While the major topics covered in each column will be related to the theme of each issue, I invite you to write in with your quirky questions, sticky issues, persnickety problems, and creative or brilliant ideas. Let this be a forum for sharing with others as we travel along our journeys with Alzheimer's disease and related dementias.

ISSN:1525-3279    

出版商:OVID    

年代:2001

数据来源: OVID