摘要:

As part of a larger grounded theory study investigating the process by which palliative care patients make everyday choices, a secondary analysis of data was conducted to investigate the ways nurses support or restrict patients’ participation in their care. Constant comparative methods were used to generate a detailed, contextually grounded description of nurses’ strategies that influenced patients’ participation in making everyday choices about their personal and nursing care. Data consisted of field notes derived from observations of patients and their caregivers in two hospital-based palliative care units and from 23 transcripts of interviews with participating nurses and patients. Nurses’ efforts to support patients’ participation in decision making were described as a four-phase process: getting to know the patient, enhancing opportunities for choice, being open to patient choice, and respecting choice. Factors influencing nurses’ use of supportive behaviors and behaviors that restricted patients’ participation in everyday choices were identified. Given the importance patients attributed to making choices, these findings provide a foundation for the design of nursing interventions that hold great potential for directly influencing quality of life.

ISSN:0162-220X    

出版商:OVID    

年代:2000

数据来源: OVID

摘要:

The current study is based on an earlier article in which relatives’ involvement in care was described as “involvement in the light” or “involvement in the dark.” Involvement in the light was characterized as the relative being well informed and experiencing a meaningful involvement. The relatives involved in the dark felt uninformed, that they were “groping around in the dark” when they tried to support the patient. The present study analyzed further the meaning of “involvement in the light” and “involvement in the dark,” and investigated whether two different care cultures, the relationship with the staff, and a rapid course of illness influence the involvement of relatives. Relatives of 52 patients who died, 30 at a surgical department and 22 in a hospice ward, were interviewed after the patients’ deaths. All the relatives of the patients in the hospice ward and 13 of those in the surgical department were judged to be involved in the light. Of the relatives judged to be involved in the dark, 12 either had a sick relative with a rapid course of illness or felt that the sick relative had died unexpectedly. A pattern was clearly observed: The relatives involved in the light described being met with respect, openness, sincerity, confirmation, and connection, whereas the opposite was experienced by those involved in the dark.

ISSN:0162-220X    

出版商:OVID    

年代:2000

数据来源: OVID

ISSN:0162-220X    

出版商:OVID    

年代:2000

数据来源: OVID

ISSN:0162-220X    

出版商:OVID    

年代:2000

数据来源: OVID