摘要:

SummaryThe parents of 41 pre‐school children with special needs volunteered to participate in a consumer survey to ascertain their satisfaction with the services they had received and how these could be improved. The survey produced an overall high level of satisfaction, although parents felt they had not received as much information as they wanted on their child's condition (29%), available help for their family (44%), financial benefits (61%), or information about their child's future (61%). Families also felt that they had not received enough family support (43%), and that professionals regularly did not understand their concerns (32%). Ways in which these issues could be addressed are discussed, along with more general issues of such consumer satisfaction survey

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1992.tb00354.x

出版商:Blackwell Publishing Ltd    

年代:1992

数据来源: WILEY

摘要:

SummaryIn order to study the impact of blindness on social and emotional development during the first year of life, the level of social‐emotional development was compared in blind and sighted 9‐ and 12‐month‐old infants. The five 9‐month‐old and the 17 12‐month‐old blind infants were completely blind from birth and exhibited no further serious disabilities. Social‐emotional development was assessed with a scale from the Bielefeld Developmental Test for Blind Infants and Preschoolers containing three subscales on emotions, social interaction and impulse control. Compared to non‐disabled infants, blind infants exhibited a more limited repertoire of facial expressions and less responsiveness. They less frequently attempted to initiate contact with their mothers (self‐initiated interactions) or comply with simple requests and prohibitions than sighted infants. These differences in the social‐emotional development of blind and sighted infants are traced back to the effects of blindness on the mother‐child interaction. The lack of visual perception appears to impede particularly the acquisit

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1992.tb00355.x

出版商:Blackwell Publishing Ltd    

年代:1992

数据来源: WILEY

摘要:

SummaryIt is well recognized that serious illness in children can have important consequences for siblings who may manifest their concerns as behavioural difficulty. The aim of the present study was to explore sibling psychological response to childhood cancer and to observe the effects that sibling knowledge had on their response. Siblings and parents of patients at the Children's Hospital, Birmingham, were interviewed using the Achenbach Child Behavior Checklist and semi‐structured ‘Illness Knowledge’ questionnaires designed by the first author. Siblings were not experiencing significant behaviour problems. The level of sibling knowledge about cancer was related to the level of sibling social competence but not to the prevalence of behaviour problems. One‐third of the siblings were talking to no one at all about their feelings, and sibling feedback yielded some important sibling needs. It was concluded that sibling response to childhood cancer may not necessarily be pathological and may also be mediated by the level of sibling social competence as well as sibling kn

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1992.tb00356.x

出版商:Blackwell Publishing Ltd    

年代:1992

数据来源: WILEY

摘要:

Book reviewed in this articles:Exacta Paediatricaby Ian Reid EntwistleCaring for Children with HIV and AIDSedited by Rosie Claxton&Tony Harrison.Lecture Notes on Paediatricsby S. R. Meadow&R. W. Smithells.

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1992.tb00357.x

出版商:Blackwell Publishing Ltd    

年代:1992

数据来源: WILEY