摘要:

SummaryJuvenile myoclonic epilepsy does not seem to be recognized as often as it should be, accounting as it does for about one in 10 of those with epilepsy. In addition to the myoclonus, absence seizures and tonic‐clonic fits can occur. The interictal EEG shows polyspike and wave discharges, and during the myoclonus, medium to high amplitude 16 Hz spikes.Patients may not be seen by a doctor until a major seizure occurs, and if a history of myoclonus is not obtained, inappropriate treatment may be given. The myoclonus may attributed to clumsiness. The inheritance of the condition is most probably polygenic, although it is claimed that juvenile myoclonic epilepsy may be determined by a single autosomal recessive gene. The most effective treatment is with sodium valproate, and this may have to be life‐long. In the presence of major seizures carbamazapine should be used with caution as it may exacerbate minor atta

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00854.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

SummaryA country‐wide, cross‐sectional survey was conducted to determine the causes of institutionalization of Romanian children aged 0–3 years. A total of 628 children were sampled at random. Interviews were conducted with directors of institutions and records of each sampled child were reviewed. Each sampled child was given a brief medical and developmental evaluation.The children in Romanian institutions have one or more chronic health conditions. Their families have multiple, complex social problems. The referral to institutions usually involved a paediatrician (76% of children). Fifty‐four per cent of children were referred primarily from paediatric and maternity hospitals. The majority of children currently interned are likely to remain in institutional care. Implications for policy and re‐organization of health and social services are

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00855.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

SummaryTorrens House provides a short residential programme for families with a baby (8–12 months of age) identified by parents as having a sleep problem such as waking frequently at night and being difficult to settle. The programme involves the promotion of infant self‐settling by the use of a controlled crying technique, together with wrapping, cessation of night feeds and establishment of a day‐time routine.Twenty families (with 23 babies) were followed through the programme and for 3 months afterwards. There were significant decreases in the number of times the babies woke, the number of night‐feeds and the length of time awake at night at 1 month follow‐up, with a reduction in depressive symptomatology of the parents and a perceived improvement in their infants' behaviour. Twenty of the 23 babies were sleeping well at 3 month

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00856.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

SummaryThis cross‐cultural retrospective study investigates the problems parents experience when told that their child is physically and/or mentally disabled. The authors try to compare, where relevant, some of the responses of the parents from different ethnic groups.The parents of 40 randomly selected coloured, 26 white and 24 black pre‐school children who were first seen at the Developmental Assessment Clinic at the Red Cross War Memorial Children's Hospital in Cape Town, South Africa between January 1989 and December 1990 were asked to participate in this study. The final sample comprised 65 children.Except for the Xhosa speaking parents, the majority of parents received the diagnosis in their own language (English or Afrikaans). Most Xhosa speaking parents denied having received an explanation of the diagnosis, or having had an opportunity to ask questions. Only a few black parents reported being asked as to their understanding of the diagnosis. White parents tended to deny the diagnosis of mental handicap more often than the other groups despite reporting that explanations were given. The majority of parents would have liked a written report after the first consultation. Despite these findings, most parents felt satisfied with the way the news were given to them, reported good progress in their children and some of them expected their children to go to a normal school. Use of a language other than the parent's tongue tends to have a negative influence on the communication between doctors and parents. A diagnosis of mild mental handicap, a ‘perception’ of good progress and an absence of visible signs of the disability contribute to parental denial of the reality of the child's developmental delay and its scholastic conse

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00857.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

SummaryThe main purpose of this study was to describe the characteristics of the social networks and social support of mothers of chronically ill children and adolescents. The data collected also allowed for the identification of the predisposing factors to receiving low social support among the mothers. Receipt of social support was assessed according to six dimensions: source of support, type of support, perceived need for support, satisfaction with the quality and the quantity of support, as well as most valued source of support. Results indicate that mothers wanted more support than they received, particularly in the areas of emotional, appraisal, and informative support. Furthermore, spouses, professionals, and immediate family members were identified by mothers as important sources of support. Discriminant analysis showed that the probability of receiving low support increased if the chronically ill child was an adolescent, the father had a higher level of education, and the family income was middle‐low. Results are discussed in terms of the implications for interventio

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00858.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

At‐Risk Infants—Interventions, Families and Research by Nicholas J. Anastasiow&Shaul Harel.Coordinating Community Care: Multidisciplinary Teams and Care Management by John Ovretveit.Triplets or More: A Practical Guide by Wendy Var

ISSN:0305-1862    

DOI:10.1111/j.1365-2214.1994.tb00859.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY