ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00804.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

Clients' personal experiences with illness or tragedy can uniquely qualify them as experts in many research‐relevant content areas. Nurse researchers can benefit from this expertise by involving such clients in important decision‐making aspects of research planning. The advantages of consulting with client‐experts in the early and subsequent stages of research are discussed in this article, which uses as an example the way such consultation has worked in the development of a study of coping in polio survivors. Consultation with client‐experts is especially appropriate when research involves sensitive issues or the measurement of subjects at vulnerable periods in their lives. It is advocated as a means of helping to ensure that participants are questioned in the most ethical, sensitive way possible and that the research will address the needs and concerns of the target pop

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00805.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

Disability usually occurs unpredictably and can happen in a fraction of a second. The major physical and psychological life changes that result from disability can affect the patient's entire family. When a parent becomes disabled, the focus of a family's attention often is shifted to the parent, and the responses and needs of the children may be overlooked. Empirical data reveal that children have special needs whenever their life changes, and they share common concerns during a major life crisis. The authors' observations at a neurological rehabilitation center indicate that children appear to go through several phases of adjustment and need specialized supportive therapy when a parent becomes disabled.

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00806.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

In this article, the authors explore references to family and health in the nursing literature and compare them with their own perceptions to propose a new definition of family health. Focusing on connectedness, energy, and hope for the future, this definition and its conceptual model can help nurses care for families in the rehabilitation setting.

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00807.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

A comprehensive internship program was conceived at Mount Washington Pediatric Hospital in Baltimore to recruit and train new nursing employees in pediatric rehabilitation. The Pediatric Nurse Internship Program was designed to provide extensive theory relevant to pediatric rehabilitation nursing, as well as preceptor‐based clinical experiences, to ease the transition of new nurses into the pediatric rehabilitation arena. The program incorporated a strong interdisciplinary team approach. The content areas included all the functional parameters of health as well as didactic information about the diagnoses specific to the pediatric population. The goal was to allow the intern to achieve clinical competence in pediatric rehabilitative nursing. Four nursing interns were enrolled in the 12‐week program, which involved completing an educational project, taking a written examination, and demonstrating evidence of clinical competencies. On completion of the program, three interns transferred into full‐time positions at the hospital and demonstrated an extremely high level of functioning. Partial support for the program was provided through grant money from the Maryland Health Services Cost Review Commi

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00808.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

Some studies have linked birth defects, disability, and chronic illness with an increased incidence of child abuse. Nurses who are involved with disabled children face a challenge in preventing child abuse and in intervening in cases in which abuse has occurred. Nurses must become aware of the risk factors and signs of abuse, understand the role of their personal attitudes toward abuse and abusers, and develop the skills to intervene effectively and deal with abusers. Thus, the authors of this article undertook a study to ascertain nurses' attitudes about emotional, sexual, and physical abuse of children with disabilities and to determine if nurses' anticipated level of comfort differed when dealing with abusers of children with disabilities in contrast to abusers of children without disabilities.

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00809.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

Rehabilitation nurses, rehabilitation clients and their families, and healthcare funders easily can obtain brochures about or tours of agencies that provide rehabilitation services to people with brain injuries. Less accessible are outcome data from these agencies, data that should be as readily available as the tours and the brochures—and that reveal far more about the agencies. In this article, the authors describe the system developed by a private, comprehensive postacute service provider for collecting, analyzing, and using the outcome data of its discharged clients. The importance of outcome data for funders, families, and facilities is stressed, and the article provides examples of how to use the data for decision making and program developmen

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00810.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

摘要:

Many concerns surround the preparation of a person with spina bifida for a successful transition into adult life and responsibilities. A model of intervention must be based on developmental concerns and timely issues from infancy through all stages of development to young‐adult life. This article discusses, within a developmental framework, issues of transition in relation to physical, social, emotional, and educational/vocational needs; it also presents a conceptual framework for the transition into adulthood. Guidelines were developed by incorporating expected outcomes of people with spina bifida and using a philosophical framework that encompasses the achievement of a balance among dependence, independence, and interdependence. This model is based on developmental issues from infancy through all stages of development to young‐adult life. Using this framework for care, the rehabilitation nurse can feel confident that the needs of clients with spina bifida and similar chronic conditions are being

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00811.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00812.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY

ISSN:0278-4807    

DOI:10.1002/j.2048-7940.1994.tb00813.x

出版商:Blackwell Publishing Ltd    

年代:1994

数据来源: WILEY