摘要:

Child and parental distress related to lumbar punctures and bone marrow aspirates and general family adaptation are evaluated in a cross-sectional study of children currently in treatment with leukemia in first remission (N = 70). A parental self-report measure developed for this study--the Perception of Procedures Questionnaire (PPQ)--yielded three factors: (a) parental satisfaction, (b) parental distress or involvement, and (c) child distress. Data from the PPQ showed high levels of both satisfaction and distress in the context of invasive procedures. Data from standardized measures of family adaptation demonstrated a range of functioning. Analyses by length of time since diagnosis indicated that parental distress remains stable over the course of treatment. The data are discussed with respect to the newly developed measure of parental procedures (the PPQ) and the need for research in this field that provides an integration of procedural distress with parent and family perceptions and adjustment.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2403_1

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

Intellectual, academic, and neuropsychological tests were administered to 20 children with cystic fibrosis (CF). Results were compared to test results from 20 controls matched for gender, age, and socioeconomic status. No differences between the groups were found. For children with CF, Verbal IQ, sensory-perceptual skills, and incidental learning correlated (rs = .39-.67) with Shwachman criteria of disease severity, with significant positive relations with the Growth and Nutrition measure, an index of the severity of the disease. Processing of tactile-perceptual information may be particularly vulnerable to disease severity. This study provides more information than previously available on the neuropsychological status of young children with CF, and it offers some hypotheses regarding the relation between disease severity and neuropsychological function.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2403_2

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

This study replicates and extends previous research examining the effect of mother presence versus absence on child distress in response to medical procedures. The effect of degree of maternal involvement during a routine immunization at a 5-year well-child visit to the pediatrician was examined. Behavioral observations of child distress and self-reported ratings of child affect were obtained in a repeated measures (pre, during, and post) design. Mother-child dyads (N = 36) participated in one of four experimental conditions: (a) mother present as usual (routine), (b) mother absent (absent), (c) mother present as observer (watch), and (d) mother present as coping coach, using distraction (coach). Results support the efficacy of instructed, limited maternal involvement compared to routine procedures: Children in the watch condition showed less behavioral distress and their post-injection affect was more positive than children in the noninstructed, high maternal involvement, routine condition.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2403_3

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

We compared behavioral problems, social competence, and family functioning of 10- to 12-year-old children born prematurely with bronchopulmonary dysplasia (BPD) to a group of premature children without BPD and to a group of full-term controls. In addition, the relative power of family, medical, and neurological characteristics in predicting cognitive and behavioral outcomes was examined. Neurologic status and socioeconomic status most strongly predicted cognitive outcome, whereas a combination of family and medical factors were the strongest predictors of behavioral functioning. Selected family and medical factors accounted for approximately 50% of the variance in children's behavioral characteristics. The findings support the concept that the psychosocial adjustment of low birthweight children with BPD is a function of the interaction of both medical risk and family characteristics.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2403_4

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor