ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_1

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

An enabling and empowering model of helping relationships is proposed as a framework for promoting increased parent participation in family-centered care of health-impaired children The model includes an operational definition of both empowerment and effective helping and descriptions of three clusters of helping behaviors that are likely to have competency-producing influences The usefulness of the model is illustrated with data from a multiple case study with two families of children with special health care needs The paper concludes with a discussion of the implications of the model for the family-centered care of children with health impairments.

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_2

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_3

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_4

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

Although much has been written about the need for psychosocial care for chronically ill children and families, major gaps in such services continue to exist Studies indicate that parents fail to express their concerns to child health care professionals, thus contributing to limitations in care This paper, based on an exploratory study, suggests that parents do express needs and concerns to their child's pediatrician, however, they do so in veiled ways, often asking to be reassured by the pediatrician at the same time In order to understand underlying issues, chnicians must often resist the urge to reassure.

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_5

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

The experience of a pediatric clinical nurse specialist and clinical social worker with a hospital-based parent support group illustrates the dynamics of parent-to-parent support when the only apparent commonality shared is having a hospitalized child The effectiveness of this approach is explored and evaluated with regard to planning family-centered care for the future.

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_6

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

This study examined parent and nurse perceptions of parent stressors in a pediatric intensive care unit using the Parental Stressor Scale Pediatric Intensive Care Unit (PSS PICU) and standardized interviews of parents A total of 41 parents and 34 nurses participated Nurses expected parents to be more stressed by every dimension of the PSS PICU than parents rated their own stress Parents felt most stressed by the dimension relating to their childs behavioral and emotional responses, although nurses expected parents to be most concerned about staff communication and parental role alteration issues Implications for clinical practice are discussed The nurses never made us feel that we were in the way, even though we probably were They always encouraged us to stay there It would be OK to rub him and touch him and to talk to him Since you can't do anything else, and you re totally helpless and you have to depend on what everybody else says, you re hoping that everything you do is the best, but to be able to just stand there and keep that contact with that baby After he dred, they let us stay in one of the special rooms They let us hold him until we could let him go (Mother of a 3-month-old boy with congenital heart disease).

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_7

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

The Ventilator Assisted Care Program has provided case management services to 36 youths and their families throughout Louisiana It has served to link tertiary care centers with community-based service systems for the comprehensive care management of children and adolescents who use ventilators The hospitalbased, state-licensed service has been funded by Louisiana's Medicaid and Handicapped Children's Services Programs on a fee for service basis It was originally funded by a grant from the Bureau of Maternal and Child Health The service planning, coordination, and monitoring activities for individual families have usually begun predischarge and have been continued throughout the home care experience The child and family have been considered to be the center of the care matrix, actively directing the service systems as well as service development.

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_8

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

摘要:

This article presents findings from a national study of home care programs for ventilatorassisted children conducted between 1984 and 1987 by the Center for Health Administration Studies at The University of Chicago These findings point to the issues that need to be addressed in the development of policies surrounding both the delivery and the financing of services for these children and their families (a) ventilator-assisted children are a widely varying group with diverse needs, (b) most families report that though they are glad to bring their child home, many difficult adjustments are required to do so, (c) full-time nursing care offers support to families but also intrudes on their privacy, (d) both families and children need social and psychological support once the child is home, (e) the needs of the child and the family may change over time, and (f) the financial burden of having a child on a ventilator at home can be a big stress on the family.

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_9

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor

ISSN:0273-9615    

DOI:10.1207/s15326888chc1702_10

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1988

数据来源: Taylor