摘要:

We assessed 41 children and adolescents who had received liver transplants at least 4 years ago, for social, behavioral, and emotional adaptation; physical function; and family stress. We compared their level of adaptive functioning to published data from chronically ill and medically well children. On many measures, transplant recipients had equivalent levels of function to the comparison groups. However, 6- to 11-year-old patients showed mild social and scholastic deficits. Patients' parents report less negative impact of the illness on the family than do parents of other chronically ill children. A listing of medication side effects and the degree to which they are problematic was obtained.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2402_1

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

Fourteen infants (under age 3) with biliary atresia were examined prior to transplant surgery to determine if they were at risk for developmental and temperament problems. Results indicate that the infants had significantly lower Mental Developmental Index scores on the Bayley (1969) Scales of Infant Development compared to the standard norms. They also had significantly lower Psychomotor Developmental Index scores. They were rated by their mothers as significantly less responsive on the Infant Characteristics Questionnaire (ICQ; Bares, Bennett-Freeland,&Lounsberry, 1979). There was a significant correlation between galactose elimination rate and the total ICQ score. These results suggest that there may be behavioral indicators of hepatic failure. Furthermore, infants and toddlers with biliary atresia may be at increased risk for developmental delays. Therefore, developmental status should be carefully monitored.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2402_2

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

In this study, we examined the moderating effects of family functioning on parent- and child-reported indices of social functioning in 30 children with liver disease. Consistent with previous research, children with liver disease exhibited significantly lower levels of social functioning compared to normative data. Hierarchical multiple-regression analyses were conducted to examine the relative influence of cognitive functioning, disease severity, and family functioning (i.e., family cohesion and adaptability, parenting stress, and parenting esteem) on children's social functioning. Family functioning accounted for an additional 23% of the variance in parent-reported social functioning and only 4% of the variance in child-reported social competence after controlling for cognitive functioning and disease severity. These preliminary results underscore the importance of considering family factors in designing interventions to enhance the social functioning of children with liver disease.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2402_3

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

We compared interpersonal distance and coping among two groups of preschool pediatric patients diagnosed with either HIV or cancer and a third group of healthy children. In comparison to the children with cancer, children with HIV indicated greater mother-child interpersonal distance--a finding that correlated with mothers' reports of social withdrawal. Other notable findings included increased father-child distance in the HIV population and mother-child discrepancies of perceived interpersonal distance. In addition, seven of the children with HIV indicated that the adults turn away--a finding that correlated with the children's knowledge of their illness. We also explored the possible role of protective communication in the pediatric HIV population.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2402_4

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor

摘要:

Common difficulties encountered by patients with pediatric traumatic brain injuries (referred to hereafter as pediatric TBI patients) were identified, and the congruence between caregiver and professional perceptions of these problems was examined. Forty-seven caregivers identified 118 obstacles experienced in the care of their pediatric TBI patients. Another sample of 46 caregivers cross-validated these problems by rating each for its frequency and difficulty. Items were rank ordered by their composite score, a derived measure obtained for each item by cross-multiplying the frequency and difficulty ratings. Twenty psychologists who work with pediatric TBI patients also rated each of the 118 problem situations. A modest correlation (tau = .28, p<.001) between the two groups' rank orders of the problem situations, although significant, suggests that there are discrepancies between caregiver and professional perceptions of problem situations. Items perceived as most common and difficult by caregivers often received far lower ratings by psychologists and vice versa. The results suggest that carefully evaluating individual patient concerns may contribute to more efficient use of professional resources and improved patient education and follow-up care.

ISSN:0273-9615    

DOI:10.1207/s15326888chc2402_5

出版商:Lawrence Erlbaum Associates, Inc.    

年代:1995

数据来源: Taylor